St\u00e9phanie D\u00e9sir, une femme de 33 ans, se bat courageusement contre une maladie neurologique complexe appel\u00e9e polyradiculon\u00e9vrite inflammatoire d\u00e9my\u00e9linisante chronique (PIDC). Ce trouble sensorimoteur affecte gravement sa qualit\u00e9 de vie, causant une faiblesse musculaire progressive, des sensations alt\u00e9r\u00e9es et des r\u00e9flexes ost\u00e9o-tendineux r\u00e9duits ou absents. La PIDC, qui provoque \u00e9galement une hyperprot\u00e9inorachie, n\u00e9cessite des soins m\u00e9dicaux continus et un soutien adapt\u00e9, deux \u00e9l\u00e9ments qui manquent cruellement dans le syst\u00e8me de sant\u00e9 actuel d’Ha\u00efti.<\/p>\n\n\n\n
En 2022, St\u00e9phanie avait d\u00e9pos\u00e9 un dossier aupr\u00e8s du secr\u00e9taire d’\u00c9tat charg\u00e9 des personnes handicap\u00e9es. Ce dossier a \u00e9t\u00e9 transmis \u00e0 l\u2019ancien ministre, qui lui a donn\u00e9 une lettre destin\u00e9e \u00e0 son m\u00e9decin pour confirmer son \u00e9tat de sant\u00e9. Cependant, depuis le d\u00e9p\u00f4t de cette lettre, aucun suivi n\u2019a \u00e9t\u00e9 effectu\u00e9. St\u00e9phanie a partag\u00e9 sa frustration face \u00e0 l’absence totale de r\u00e9ponse :<\/p>\n\n\n\n
\n“Depuis que j\u2019ai apport\u00e9 cette lettre, il n\u2019y a jamais eu de suivi ni d\u2019appel. Je suis all\u00e9e plusieurs fois au bureau et je n\u2019ai jamais trouv\u00e9 le ministre.”<\/p>\n<\/blockquote>\n\n\n\n
Un Appel \u00e0 l’\u00c9tat pour Prendre ses Responsabilit\u00e9s<\/h5>\n\n\n\n
Face \u00e0 cette situation inacceptable, St\u00e9phanie invite l’\u00c9tat \u00e0 prendre ses responsabilit\u00e9s envers les personnes \u00e0 mobilit\u00e9 r\u00e9duite. Elle demande \u00e9galement au directeur, qui a pr\u00eat\u00e9 serment de servir les handicap\u00e9s, d’arr\u00eater de les faire souffrir par n\u00e9gligence et manque de soutien. Son combat d\u00e9passe sa situation personnelle ; il s’agit d’une lutte pour tous ceux qui sont laiss\u00e9s pour compte dans un syst\u00e8me qui ne reconna\u00eet pas leurs besoins.<\/p>\n\n\n\n
Une Demande de R\u00e9ponse Imm\u00e9diate<\/h5>\n\n\n\n
St\u00e9phanie attend toujours une r\u00e9ponse de Genard Joseph, esp\u00e9rant une prise de conscience et des actions concr\u00e8tes pour am\u00e9liorer la situation des personnes handicap\u00e9es en Ha\u00efti. Son appel est clair : elle demande justice, reconnaissance et un syst\u00e8me de soutien solide pour toutes les personnes qui, comme elle, souffrent en silence.<\/p>\n\n\n\n
Un Appel \u00e0 l’Action<\/h2>\n\n\n\n
L\u2019histoire de St\u00e9phanie D\u00e9sir est un rappel poignant des d\u00e9fis auxquels sont confront\u00e9es les personnes handicap\u00e9es en Ha\u00efti. Son appel \u00e0 l’\u00c9tat et aux responsables gouvernementaux pour qu’ils agissent et mettent fin \u00e0 la n\u00e9gligence syst\u00e9mique est un cri de ralliement pour tous ceux qui d\u00e9fendent les droits des personnes vuln\u00e9rables. Les autorit\u00e9s doivent prendre des mesures imm\u00e9diates pour r\u00e9pondre \u00e0 ces besoins urgents et garantir que chaque citoyen re\u00e7oit le respect et le soutien qu’il m\u00e9rite.<\/p>","protected":false},"excerpt":{"rendered":"
St\u00e9phanie D\u00e9sir, une femme de 33 ans, se bat courageusement contre une maladie neurologique complexe appel\u00e9e polyradiculon\u00e9vrite inflammatoire d\u00e9my\u00e9linisante chronique (PIDC). Ce trouble sensorimoteur affecte gravement sa qualit\u00e9 de vie,… <\/p>","protected":false},"author":1,"featured_media":360,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"googlesitekit_rrm_CAowqciiDA:productID":"","_gspb_post_css":"","_uag_custom_page_level_css":"","_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"St\u00e9phanie D\u00e9sir : Un Appel Urgent pour la Reconnaissance et le Soutien des Personnes Handicap\u00e9es en Ha\u00efti","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[15,9],"tags":[89],"class_list":["post-278","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sante","category-societe","tag-stephanie"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/yogannmagazine.com\/wp-content\/uploads\/2025\/11\/c6ad2f91-00e8-4338-9a5e-cc87a3a27fba.jpg","uagb_featured_image_src":{"full":["https:\/\/yogannmagazine.com\/wp-content\/uploads\/2025\/11\/c6ad2f91-00e8-4338-9a5e-cc87a3a27fba.jpg",780,1040,false],"thumbnail":["https:\/\/yogannmagazine.com\/wp-content\/uploads\/2025\/11\/c6ad2f91-00e8-4338-9a5e-cc87a3a27fba-150x150.jpg",150,150,true],"medium":["https:\/\/yogannmagazine.com\/wp-content\/uploads\/2025\/11\/c6ad2f91-00e8-4338-9a5e-cc87a3a27fba-225x300.jpg",225,300,true],"medium_large":["https:\/\/yogannmagazine.com\/wp-content\/uploads\/2025\/11\/c6ad2f91-00e8-4338-9a5e-cc87a3a27fba-768x1024.jpg",768,1024,true],"large":["https:\/\/yogannmagazine.com\/wp-content\/uploads\/2025\/11\/c6ad2f91-00e8-4338-9a5e-cc87a3a27fba-768x1024.jpg",768,1024,true],"1536x1536":["https:\/\/yogannmagazine.com\/wp-content\/uploads\/2025\/11\/c6ad2f91-00e8-4338-9a5e-cc87a3a27fba.jpg",780,1040,false],"2048x2048":["https:\/\/yogannmagazine.com\/wp-content\/uploads\/2025\/11\/c6ad2f91-00e8-4338-9a5e-cc87a3a27fba.jpg",780,1040,false],"trp-custom-language-flag":["https:\/\/yogannmagazine.com\/wp-content\/uploads\/2025\/11\/c6ad2f91-00e8-4338-9a5e-cc87a3a27fba-9x12.jpg",9,12,true]},"uagb_author_info":{"display_name":"Jouvens Guelord","author_link":"https:\/\/yogannmagazine.com\/ht\/author\/yogannmag\/"},"uagb_comment_info":0,"uagb_excerpt":"St\u00e9phanie D\u00e9sir, une femme de 33 ans, se bat courageusement contre une maladie neurologique complexe appel\u00e9e polyradiculon\u00e9vrite inflammatoire d\u00e9my\u00e9linisante chronique (PIDC). Ce trouble sensorimoteur affecte gravement sa qualit\u00e9 de vie,…","jetpack_sharing_enabled":true,"jetpack-related-posts":[{"id":2518,"url":"https:\/\/yogannmagazine.com\/ht\/26\/reginald-cange-apporte-son-soutien-au-mouvement-lance-par-thoyart\/","url_meta":{"origin":278,"position":0},"title":"R\u00e9ginald Cang\u00e9 apporte son soutien au mouvement lanc\u00e9 par Thoy\u2019Art","author":"Jouvens Guelord","date":"January 26, 2026","format":false,"excerpt":"Depuis le 1er janvier 2026, un mouvement citoyen lanc\u00e9 par le collectif artistique Thoy\u2019Art suscite de vives r\u00e9actions dans l\u2019espace public ha\u00eftien. 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